Patient-Owned Health Collective
Patients building the research we need.
Banyan Grove is a patient-owned health collective. We believe it's your right to know how your health data is used and what research it powers.
What we are
A health collective, owned by patients.
Every member gets a vote. On who accesses your data. On what research it supports. On how the value it creates comes back to you and your community.
This is yours to build.
Your data, your rules.
Dynamic consent means you choose which studies your data enters. You can review each proposal, opt in, opt out, and change your mind at any time. No surprises, no fine print.
Your voice, your vote.
One member, one vote. You help elect the board, shape the research agenda, and review every data access proposal. Your membership is ownership.
Research that comes back to you.
When studies use the collective's data, findings come back to members in plain language. You stay connected to the research your data supports.
Contributing to treatments and cures.
When research leads to better treatments, your data played a role. When it leads to a cure, you had a say in how it got there.
What you get
Tools built for your health journey.
Membership starts with things that are useful to you right now. Treatment tools, community, and research translated into language you can actually use.
Treatment Tracker
Your complete treatment history in one place. Every regimen, every response, every change. Walk into appointments informed.
Coming soonLab Visualization
M-protein, light chains, blood counts: the trends matter as much as any single number. See them clearly, with context.
Coming soonPeer Matching
Connect with patients who share your diagnosis, treatment path, or stage. Real conversations with people who get it.
Coming soonResearch Library
Myeloma research in plain language. Findings, trial results, treatment developments. Respects your intelligence without requiring a PhD.
Coming soonData Contribution
Pull copies of your health records into a platform you own. You decide what's shared, with whom, and for how long. Your consent is a governed relationship, not a checkbox. Democratic data relations in practice.
Coming soonHow it works
Membership deepens at your pace.
There's no funnel, no required sequence. Think of it as concentric circles. You start at the center with what's useful to you, and move outward as you're ready.
Useful tools.
Treatment tracking, lab visualization, peer connections, research in plain language. These are yours the moment you join. No data contribution required.
Data contribution.
When you're ready, pull copies of your health records into a platform you own. Set your consent preferences. Review proposals. Change your mind whenever you want.
Governance participation.
Vote on who accesses the collective's data. Elect the ethics board. Shape the research agenda. Run for the board yourself. The power is always yours.
Shared research purpose.
The outermost circle holds it all together: contributing to better treatments and, one day, a cure. Your data, your voice, and your participation all feed the research that matters to you.
$42 one-time buy-in makes you a co-owner. If that's not possible right now, a fellow member or our foundation will sponsor your membership. You get the same ownership, the same vote, the same community. Either way, you're building this with us.
Who we are
Built by a patient, for patients.
Banyan Grove was started by a myeloma patient who spent years in treatment, then years studying how communities around the world govern their own health data. The cooperative comes from lived experience and the conviction that patients deserve to govern the data they generate, the research it supports, and the value it creates.
Dhruv Deepak
Founder
The invitation
We're building this together. It starts with you.
Banyan Grove is in its founding phase. We're looking for the first patients who want to own something: a cooperative where your data works for you, your voice shapes the research, and your membership puts you on the path to better treatments and, one day, a cure.
Founding members shape what this becomes: the tools, the governance, the research agenda, the community.
Become a founding member$42 one-time buy-in. If that's not possible right now, a fellow member or our foundation will sponsor you. Either way, you're building this with us.